Princess P

More prayers needed
So I first want to give thanks to all of our friends, family, and Parker supporters for making Sunday the 30th so special. Sept 30 is National Microcephaly Awareness Day and I asked people to wear yellow to show support for Parker and her microcephalic friends. It was amazing! I received so many pictures. I made collages of them and have included one of them. (so many pics, it took 4 collages to include them all).
And now to update on the princess herself. She is still doing poorly. And as of yesterday we are having to add another medication. Her kidneys are continuing to do worse. Her swelling is getting pretty bad (her face and hands and lower legs are becoming even more tight and shiny). They are starting her on Bumetanide, a medicine used for Congestive Heart Failure patients. This diuretic will be used along with the one she's already on (lasix). Depending on how this med works will decide our next step in decreasing her fluid intake. They are afraid that the little bit of urine that she is putting out is only water and not the toxins as well.
Her heart has started beating irregular- the actual rhythm itself. There's no rhythm anymore. It's erratic. This scares me. She's still on oxygen 24 hrs. Her temp is still all over place as well. From a low-grade fever to 88's & 89's. And we've upped her Ativan and morphine again to help keep her comfortable.
So, in short, we need more prayers. We're still living life as best we can. Moment by moment, day by day. I've even managed to get partial smiles here and there which can make any day better!
Thank you for reading, supporting, and praying for us. It means the world!
Love,
Megan