Bearing the unbearable

Wow! What a few days we have had. Parker has taken a turn. She has been in respiratory distress since Wednesday morning. But instead of low respirations each minute she is breathing anywhere from 46-70 breathes/minute. She has lost a lot of her coloring lately too. She's pale and blue. Her heart rate is high at the moment and her oxygen is getting worse. It was really bad yesterday but has improved some today. Her swelling and third-spacing have continued to get worse so we have stopped all her feedings in hopes it will help.
We had quite a scare last night too. We almost lost her. Everything dropped. And she was very blue. She recovered on her own but it lasted about 1 1/2 min (an eternity if you ask me).
So today phillip and I went to a few funeral homes today to finally decide on a place. I picked one that will work well for us. It's such a reality check to actually walk into a funeral home to get info for your child. There's very few words to describe it and the feelings. Unreal is all I can really come up with.
But one thing that has made this bearable for our family is the continued support and prayers from everyone. It means so much to us and we appreciate it. Thank you all! <3
Megan