Little fighter!

Parker is such a fighter!

She is so strong and she amazes me daily.  On Friday we decreased her intake (formula and pedialyte).  We had to.  Her kidneys are starting to shut down.  Her body is unable to take the same amount of fluids as it was in the past.  Her temperature regulation has gotten pretty bad too.  She has days that her body temp never gets above 93 degrees.  It has gotten as low as 87.8 (yes you read that correctly 87.8 degrees). 

 

 

(Parker finally got her new bed...isn't is awesome!!)

 

Today she then ran a low-grade fever.  These things are bound to happen (apparently) because her brain just can't keep up like it used to. 

 

On Sunday we had an amazing day!  We were able to take family pictures!

A photographer even came out to our house.  Parker even participated by waking up just in time for pictures to be done.

 

Like I said...she amazes me! 

(Parker and her Daddy...hand in hand...with brother sleeping in the background)

 

We are so thankful to be able to capture these moments!!!!

(Parker and Mommy...look at P's green nails...so sweet)

 

Always,

Megan

 

 

September 30th is Microcephaly Awareness Day...that is this Sunday!

 

Please would you wear yellow in honor of sweet Parker and her family. 

Microcephaly is one of Parker's diagnosis...and her family would be honored if you would honor her in this way!

Feel free to take photos and tag your self for Megan on Face book!

Love,

Jamie C.