Thank you to everyone that has shown our family so much love and support. The out-pour of kind words, prayers, and donations have truly been a blessing to us on this difficult journey. Parker's "celebration of life" is this Saturday, October 27th, at 2pm. It will be held at Roselawn Funeral Home located at 1000 S. Highway 175 Seagoville, TX 75159. We welcome everyone to come share in this special day for such a special little girl. Parker's favorite color was yellow, if you insist on flowers please send white, yellow, or a combination of the two. We will also be releasing white and yellow balloons following the service. We want this to be a special celebration, so the typical somber, black formal attire is not expected, please come as you are. More information can be found at http://www.roselawn-funerals.com/obituaries/tribute.html?url=http://stei-23980.tributes.com/show/Parker-Lee-Reynolds-94631122
We are humbled by all the donations that came through since we started this blog in early September. Thanks to everyones generosity I was able to stay home from work for the last two months and be there for Parker in everyway. You all are a true blessing and may God bless you all in return.
Phillip and I have dreamt of starting a organiztion for the past year where we could help other special needs families. We have learned an abundance of information through Parker's life and we want to share that information with other families. Due to the great amount of donations through this blog we now have the opportunity to start "The Parker Project", a non-profit organization to help these famlies in a multitude of ways. All left-over donations and future donations will now go towards The Parker Project. In the coming weeks we will update the blog with an official website, but for now please use the chip-in button.
Now a little bit about The Parker Project....
Parker was a blessing to us and we want her to bless other families for many years to come. Raising a special little girl means learning special information. You learn something new every single day and sometimes these things become overwhelming. The first mission of The Parker Project is to share this wealth of information with families that have just welcomed their special baby into the world. We can do this by becoming a resource for these families on how to get started on their journey i.e. who to call to for resources, things to expect, etc. The second mission is to provide families with medical equipment. Parker's bedroom was essentially a hospital room, it contained pumps, oxygen, nursing supplies, wheelchair, special therapy equipment, etc. Many states do not have resources to acquire these expensive needs and many families do not have medical insurance. We will source these products and get them to these faimilies. The third mission is to help families just like ours. When one or both parents are unable to work, we hope to provide them some financial stability by cash donations.
We are forever indebited by the joy and knowledge that Parker brought to us and we feel it is only right that many other families will be blessed in her memory.
Love, Megan
Monday, October 22, 2012
Saturday, October 20, 2012
She's at rest...
I just got a phone call from Megan. She asked me to share with you that sweet Parker has gained her wings. It is with a heavy heart that I ask you to please keep them in your prayers. Megan will give a personal update as soon as she is able. She is so thankful for everyone's support and love for Parker.
I will Update when arrangements are made.
Jamie C
I will Update when arrangements are made.
Jamie C
Wednesday, October 17, 2012
The hardest thing we've ever had to do!
Parker continues to show her true colors, not backing down from a fight! She is one tough baby girl.
She is still very unstable, we don't know if she will be with us for 2 more minutes or two more days. Her right lung is completely diminished and her left lung is nearly filled with fluids now. She struggles for her every breath. She remains on 5 liters of oxygen, and today that has kept her at 93%, but most days she is in the 80's.
The hospice team suggested we have our family come in and say their goodbyes on Friday. My mind is spinning, how can all this be happening to my baby girl?!?!
This was the hardest thing we have ever had to do as a family.
She is so medicated on Ativan and Morphine, she is basically in a coma type state. ... And yet she continues to fight.
This has been the hardest thing I have ever been through. I hurt so bad I am numb. Too many emotions to comprehend or process.
Minute by minute, hour by hour I sit by her side, telling her it is ok for her to go home. As hard as it is to say that, and knowing that when she leaves I will have a Parker shaped hole in my heart that can never be filled again...I know she needs to stop suffering!
No mamma should have to watch their child suffer!
Thank you for your continued support through this heartbreak! We appreciate and need all the prayers!
Love,
Megan
She is still very unstable, we don't know if she will be with us for 2 more minutes or two more days. Her right lung is completely diminished and her left lung is nearly filled with fluids now. She struggles for her every breath. She remains on 5 liters of oxygen, and today that has kept her at 93%, but most days she is in the 80's.
The hospice team suggested we have our family come in and say their goodbyes on Friday. My mind is spinning, how can all this be happening to my baby girl?!?!
This was the hardest thing we have ever had to do as a family.
She is so medicated on Ativan and Morphine, she is basically in a coma type state. ... And yet she continues to fight.
This has been the hardest thing I have ever been through. I hurt so bad I am numb. Too many emotions to comprehend or process.
Minute by minute, hour by hour I sit by her side, telling her it is ok for her to go home. As hard as it is to say that, and knowing that when she leaves I will have a Parker shaped hole in my heart that can never be filled again...I know she needs to stop suffering!
No mamma should have to watch their child suffer!
Thank you for your continued support through this heartbreak! We appreciate and need all the prayers!
Love,
Megan
Saturday, October 13, 2012
Pray for comfort
Parker continues to struggle. Her little fight is still fighting, but her last few days have been rough.
Megan is handling it all with grace, she is such an amazing, strong mommy!!!
I don't know how she does it. She loves sweet baby Parker more than anything, and no one should have to say goodbye to their baby! It just isn't fair.
Please keep praying for the medications to keep Parker comfortable and for the family, that they find peace in this storm.
Also, the donate button to the right is still open. If you don't see it on your iPad or iPhone go to www.fortheloveofparker.blogspot.com on your safari browser and it should work.
All donations go directly to Parkers family to help with medical expenses and for Megan to stay home with Parker. If you are new to this story, Megan took leave from her job to be home with Parker without pay. Because of everyones generous support, she is able to be home right now when Parker needs her the most. They are forever grateful for everyone's prayers, kind words of encouragement, thoughts and donations.
Last night Megan sent me a sweet picture of Parker in her Halloween Hello Kitty and 'Ana-bow'. She looks absolutely precious!
Keep the prayers coming, they are needed! Have a blessed weekend!
Jamie C.
Megan is handling it all with grace, she is such an amazing, strong mommy!!!
I don't know how she does it. She loves sweet baby Parker more than anything, and no one should have to say goodbye to their baby! It just isn't fair.
Please keep praying for the medications to keep Parker comfortable and for the family, that they find peace in this storm.
Also, the donate button to the right is still open. If you don't see it on your iPad or iPhone go to www.fortheloveofparker.blogspot.com on your safari browser and it should work.
All donations go directly to Parkers family to help with medical expenses and for Megan to stay home with Parker. If you are new to this story, Megan took leave from her job to be home with Parker without pay. Because of everyones generous support, she is able to be home right now when Parker needs her the most. They are forever grateful for everyone's prayers, kind words of encouragement, thoughts and donations.
Last night Megan sent me a sweet picture of Parker in her Halloween Hello Kitty and 'Ana-bow'. She looks absolutely precious!
Keep the prayers coming, they are needed! Have a blessed weekend!
Jamie C.
Thursday, October 11, 2012
Bearing the unbearable
Wow! What a few days we have had. Parker has taken a turn. She has been in respiratory distress since Wednesday morning. But instead of low respirations each minute she is breathing anywhere from 46-70 breathes/minute. She has lost a lot of her coloring lately too. She's pale and blue. Her heart rate is high at the moment and her oxygen is getting worse. It was really bad yesterday but has improved some today. Her swelling and third-spacing have continued to get worse so we have stopped all her feedings in hopes it will help.
We had quite a scare last night too. We almost lost her. Everything dropped. And she was very blue. She recovered on her own but it lasted about 1 1/2 min (an eternity if you ask me).
So today phillip and I went to a few funeral homes today to finally decide on a place. I picked one that will work well for us. It's such a reality check to actually walk into a funeral home to get info for your child. There's very few words to describe it and the feelings. Unreal is all I can really come up with.
But one thing that has made this bearable for our family is the continued support and prayers from everyone. It means so much to us and we appreciate it. Thank you all! <3
Megan
We had quite a scare last night too. We almost lost her. Everything dropped. And she was very blue. She recovered on her own but it lasted about 1 1/2 min (an eternity if you ask me).
So today phillip and I went to a few funeral homes today to finally decide on a place. I picked one that will work well for us. It's such a reality check to actually walk into a funeral home to get info for your child. There's very few words to describe it and the feelings. Unreal is all I can really come up with.
But one thing that has made this bearable for our family is the continued support and prayers from everyone. It means so much to us and we appreciate it. Thank you all! <3
Megan
Saturday, October 6, 2012
Princess P
More prayers needed
So I first want to give thanks to all of our friends, family, and Parker supporters for making Sunday the 30th so special. Sept 30 is National Microcephaly Awareness Day and I asked people to wear yellow to show support for Parker and her microcephalic friends. It was amazing! I received so many pictures. I made collages of them and have included one of them. (so many pics, it took 4 collages to include them all).
And now to update on the princess herself. She is still doing poorly. And as of yesterday we are having to add another medication. Her kidneys are continuing to do worse. Her swelling is getting pretty bad (her face and hands and lower legs are becoming even more tight and shiny). They are starting her on Bumetanide, a medicine used for Congestive Heart Failure patients. This diuretic will be used along with the one she's already on (lasix). Depending on how this med works will decide our next step in decreasing her fluid intake. They are afraid that the little bit of urine that she is putting out is only water and not the toxins as well.
Her heart has started beating irregular- the actual rhythm itself. There's no rhythm anymore. It's erratic. This scares me. She's still on oxygen 24 hrs. Her temp is still all over place as well. From a low-grade fever to 88's & 89's. And we've upped her Ativan and morphine again to help keep her comfortable.
So, in short, we need more prayers. We're still living life as best we can. Moment by moment, day by day. I've even managed to get partial smiles here and there which can make any day better!
Thank you for reading, supporting, and praying for us. It means the world!
Love,
Megan
So I first want to give thanks to all of our friends, family, and Parker supporters for making Sunday the 30th so special. Sept 30 is National Microcephaly Awareness Day and I asked people to wear yellow to show support for Parker and her microcephalic friends. It was amazing! I received so many pictures. I made collages of them and have included one of them. (so many pics, it took 4 collages to include them all).
And now to update on the princess herself. She is still doing poorly. And as of yesterday we are having to add another medication. Her kidneys are continuing to do worse. Her swelling is getting pretty bad (her face and hands and lower legs are becoming even more tight and shiny). They are starting her on Bumetanide, a medicine used for Congestive Heart Failure patients. This diuretic will be used along with the one she's already on (lasix). Depending on how this med works will decide our next step in decreasing her fluid intake. They are afraid that the little bit of urine that she is putting out is only water and not the toxins as well.
Her heart has started beating irregular- the actual rhythm itself. There's no rhythm anymore. It's erratic. This scares me. She's still on oxygen 24 hrs. Her temp is still all over place as well. From a low-grade fever to 88's & 89's. And we've upped her Ativan and morphine again to help keep her comfortable.
So, in short, we need more prayers. We're still living life as best we can. Moment by moment, day by day. I've even managed to get partial smiles here and there which can make any day better!
Thank you for reading, supporting, and praying for us. It means the world!
Love,
Megan
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